May 2011

Oh no. Not again.

I don’t understand. What’s happening?

For the third night in a row, I’ve woken up to Don sitting on the edge of the tub, watching the light bulb above the sink. When I ask him what’s going on, he says that the wall is going to catch on fire and he has to watch to put the fire out when it happens.

For heaven’s sake, I explode for the third time, shut the damn light out and come to bed. No light; no fire!

But on this night, it’s me that can’t sleep. Something is wrong.

I wonder who has the dementia here! I started to write this blog in September and then lost it. Found it today. A Christmas present to me.

There is a summit of rich nations going on in the UK called by their prime minister to discuss the growing problem of dementia. On the news this morning, three words were quoted in the context of both the caregiver and the patient:
     agony
          heartbreak
                despair

My husband was finally diagnosed with Mixed Dementia: a combination of Alzheimer's and Vascular Dementia. I want to tell my blog the story of my journey with him.